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Wednesday 17 July 2019

The Social Care Crisis Is A Dementia Crisis: Alzheimer's Society Call On South East Based Politicians To Support Dementia Fund

The Alzheimer's Society has called on MPs across the South East to support a dedicated Dementia Fund to end the 'financial punishment' faced by people living with dementia
 


The dementia charity is alerting MPs across the South East to the scale of the care crisis and the injustice faced by local people living with the condition.

The charity is also calling on politicians of all parties to back a dedicated Dementia Fund to end the financial punishment faced by people with dementia across the region.

Earlier this week Alzheimer's Society staged a hard-hitting photographic exhibition at the Houses of Parliament titled Dementia Care: The crisis behind closed doors

The diverse collection of powerful stories from across the country were chosen to illustrate the challenges that people affected by dementia face, and to inform the debate on social care reform.

Nimisha, whose father, Sharad, is living with dementia, is just one of the stories to feature in the photo exhibition. 


Nimisha said: 

"Following a memory test and scan, our dad was diagnosed with dementia in 2015. 

"At this point, mum and I went on a dementia awareness course and we were told we would have to fight to get our voice heard and to get dad the right support. But nothing prepared us for how hard it would be.

"We spoke to social services, and the third question they asked us was, 'How much money do you have in your bank account?' 

"We were told if we had more than a certain amount, we wouldn't get any support, and the tone was just so cold.

"We were a family facing up to dementia for the first time. We needed compassion, empathy and guidance. But we were spoken to in a way that made us feel it was wrong to ask for support and information. 

"It was like dialogue was being shut down, not opened up. I spoke to social services again on the phone after that, and was told dad needed an assessment for his needs to be worked out. But then there was silence. No follow-up letter. No phone call. Nothing."

Alzheimer's Society wants to see £2.4billion set aside to cover the additional social care costs people with dementia are asked to pay because of the complexity of their health condition.

The charity believes the money should be taken from the so far unallocated £3.5bn funding pot for community care attached to the NHS Long-Term Plan.

Liz Taylor Alzheimer's Society Services Manager for East Sussex, Brighton and Hove commented:

"Thousands of people across the region are facing financial punishment, just because they happened to develop dementia and not some other disease. 

"The evidence of the gross inequity continues to pile up, and yet still the Government does nothing.

 "We need an immediate cash injection through a dedicated Dementia Fund, while the Government works out a long term solution to finally end this crisis in care. 

"With diagnosis rates of dementia at an all-time high, action can"t come soon enough."

To join the campaign, go to alzheimers.org.uk/fixdementiacare.

by: Mike Cobley




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