Brighton Magazine

The Brighton Magazine

Selected Brighton Magazine Article

Monday 31 August 2020

Girls With Limited Mobility Who Have Half A Brain Reunite In Brighton After 198 Mile Charity Walk

Lockdown didn't mean staying still for Caity Downs, 19, from Portslade in Brighton, or Angelina Mills, 11, from Gresham in Norfolk.

Despite having minimal movement in one side of their bodies, they have decided to walk 198 miles (the distance between their homes) over ten weeks, to raise funds for Sturge Weber UK, the charity that's been there for them since they were babies. 

Sturge Weber Syndrome means abnormal blood vessels form in early development, causing a port wine stain on one side of the face, and in some cases, severe epileptic fits that require removal of brain tissue. 

Both girls suffer from developmental delays, social and behavioural deficits, hemianopia (vision loss in one side of the eyes) and autism. 

On their 'weak' side, they have no mobility in either their hand or ankle.

Despite all of the above, when lockdown kicked in, the girls' summer plans evaporated, but instead of feeling bored, they set themselves this challenge to stay positive, keep moving, raise awareness about their condition, and raise urgently needed funds. 

Caity: My Life With Half a Brain

Caity's attitude is, "I can do this, I will do this," and despite their disabilities, the girls have beaten their fund-raising target of £1,250 to raise £6,001 so far.  

Mother of Angelina, Lisa Massingham, said: 

"I'm so proud that both girls are raising money for the charity that has helped them through their childhood years. 

"I don't know what we would have done without its support."

The girls and their mothers have been recording their progress via their Just Giving page, and tracking their distances via the app, Map My Walk. 

Caity's mother, Paula Harman, adds: 

"Anything is possible! We want to raise money for the charity and raise awareness about SWS across the UK. 

"The charity lost a lot of funding due to COVID, yet we all need its support now more than ever." 

by: Mike Cobley


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