Brighton Magazine

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Thursday 16 February 2017

Little Boys Illness Inspires Couple To Tackle Brighton Marathon

Husband and wife team, Emma and Ross Murray, are taking on the Brighton Marathon this April to raise money to find a cure for children with Duchenne.

The 31 year old duo, from Bedford are running on Sunday 9th April 2017 to raise awareness and money for Harrison's Fund after their best friend's son, Nardo, was diagnosed with the disease two years ago.

Harrison's Fund is named after the ten year old Harrison Smith from Surrey who was diagnosed with Duchenne Muscular Dystrophy, a rare genetic condition which affects all the muscles in the body, causing them to waste away.  

Harrison's Fund"s goal is to get as much money as possible into the hands of the world's best researchers, who are working to find a cure for Duchenne. The charity is currently funding 1twelve research projects in the US and the UK. 


Emma, a teacher at Bedford School said:: 

"When Nardo was diagnosed we were all devastated for the family and vowed to support them in anyway we could. John and Marie decided they wanted to raise money for Harrison's Fund so we helped to organise a wine tasting last October which £3,000 but we wanted to do something more ourselves. 

"I've run a bit in the past, completing 10km races for charity before but never a full marathon, so this really is a big challenge for me. Together we hope to raise £2,000."

The Brighton Marathon is one of the UK's favourite 26.2-milers. It was founded by former international athlete Tim Hutchings and by former Brighton club athlete, Tom Naylor. 

Heather Smith fundraiser at Harriso'"s Fund said: 

"It's great to have the Murrays on Team Harrison. Every penny raised by people like Emma and Ross help us to get that one step closer to unlocking the science behind this devastating disease and one step closer to a cure for Harrison, Nardo and the thousands of boys like them, racing against the clock."


by: Mike Cobley




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